115. Carolyn Coghlan

What services do you believe are most important for the ACT? I am a Canberra woman living with a neuromuscular condition - I have a type of muscular dystrophy called FSHD. Living in the ACT, it has not been possible for me, or others living with a neuromuscular condition in the ACT, to access essential diagnostic services or ongoing treatment and support through coordinated allied health services to maintain my ability as much as possible. This is due to the lack of coordinated services seen in other jurisdictions in the manner of neuromuscular clinics. Living with a debilitating disability makes it difficult to do this coordination ourselves. Were there a neuromuscular clinic, people living with these conditions would experience greater access to essential health services to maintain their health and improve their quality of life. This would help to include us in the Canberra community as we would be able to make connections with others and have overall better healthcare. It would lessen the financial burden of having to travel to Sydney for these health services and it would lessen the impact of the disability on people's lives.
How can the ACT Government deliver current services more efficiently and productively or to better meet the needs of Canberrans?Through the provision of a neuromuscular clinic.
Are there particular services that you think the ACT Government can improve?Coordination of services in a neuromuscular clinic.
What can the ACT Government do to make Canberra even more liveable?Having a neuromuscular clinic.